How common is NET?
Neuroendocrine tumors (NETs) are relatively rare compared to many other types of cancer. The exact incidence and prevalence of NETs can vary by location, and it’s essential to differentiate between various subtypes of NETs based on their origin. Here are some general points regarding the prevalence of NETs:
Overall Incidence:
NETs are considered rare, but their incidence has been increasing over the years. The reported incidence can vary, but it’s estimated that there are approximately 3 to 5 cases per 100,000 people annually. It is estimated that more than 12,000 people in the United States are diagnosed with a NET each year, and approximately 171,000 people are living with this diagnosis. The number of people diagnosed with this type of tumor has been increasing for years. This increase is thought to be related to improvements in the way NETs are diagnosed, including better imaging tests and endoscopy, and increased awareness of these tumors.This means that NETs are not as common as more prevalent cancers like breast, lung, or colorectal cancer.
Types and Location:
The prevalence of NETs can also differ significantly based on the specific type and location of the tumor. For example, gastrointestinal neuroendocrine tumors (GI-NETs) and lung NETs are among the more common subtypes. Carcinoid tumors, a type of GI-NET, are relatively more prevalent than other NETs.
Age and Gender:
NETs can occur at any age, but some types, like pancreatic NETs, are more commonly diagnosed in adults. Additionally, NETs may exhibit variations in prevalence by gender, with certain subtypes affecting men and women differently.
Slow Growth:
One reason for the rarity of NETs is that many of them are slow-growing, and some individuals may live for years without even being aware of their presence.
Improved Detection:
The increasing incidence of NETs can also be attributed, in part, to improved diagnostic techniques, such as advanced imaging and biomarker testing, which have made it easier to identify and diagnose these tumors.
Because of the rarity of NETs and their varied clinical behavior, it is crucial for individuals who are diagnosed with a NET to consult with a medical team experienced in the management of these tumors. Accurate diagnosis, appropriate staging, and personalized treatment planning are essential to improving outcomes for patients with NETs.